An Isle of Wight teenager with an extremely rare life-limiting condition is taking on the Island's Red Squirrel trails from Newport to Sandown - for charity.
At the age of three, Amelia Burns was diagnosed with a very rare, life-limiting, neurological condition called MECP 2 Duplication Syndrome and she is both physically and mentally disabled.
Although the condition mainly affects males, at the time of her diagnosis she was the first female diagnosed in the UK and thought to be just the second case in the world.
Her family were told that she would be unlikely to make her teenage years, but she will be turning 17 in August, her family hopes to celebrate when restrictions are lifted.
Amelia, with the help of her family, will be taking on the Red Squirrel trails from Newport to Sandown (10 miles) on either the 1, 2 or 3 May (weather permitting) and has already managed to raise more than £2,000.
She will be raising money for charity When You Wish Upon a Star - which helps make dreams come true for children with life-limiting conditions.
Her family intent to push Amelia in her wheelchair, with Amelia undertaking a short walk once every half hour or so.
Islanders are being asked to support Amelia, by completing their own ten-mile walk on the same weekend.
Her Dad Daniel said:
'We would love for you to join us by completing your own 10 mile walk across that weekend and if so we would like to suggest a minimum of £10 for each walker if you can afford to do so, alternatively, if you don’t feel up for a walk but still wish to donate, please feel free to do so.
'To bring some extra fun to the proceedings, please join in with the red squirrel theme in some shape or form; we will leave it to your very active imaginations! Feel free to share with me though!'
You can donate to Amelia's cause here.
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